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Cystic Fibrosis: What is the future of Kaftrio on the Island?
X Manx Newscast - News Interviews in Full
Monday, 4 December 2023 - 9 minutes
There's been growing concern among Cystic Fibrosis sufferers in the UK about potential changes to access to a "life-changing" drug.
Called Kaftrio, it can significantly reduce the effects of the condition, and even significantly extend life expectancy.
But NICE has recommended NHS England stop giving it to new patients as it's too expensive.
It currently costs between £100,000-£160,000 per year, per patient.
Leanne Harper, who lives on the Island and takes Kaftrio, has been speaking to Amy Griffiths about her experience of living with the condition:
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