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Family's relief at news drug may be offered

Translarna for Finley if drug cost reduced

Parents of a seven-year-old boy who's had news he could soon be given treatment for Duchenne Muscular Dystrophy say they're relieved their campaign is a success.

Health and Social Care Minister Kate Beecroft approved the use of the £180,000 a year - that's if the drug company can supply Translarna to the Island at the same reduced rate offered to NHS England. 

She confirmed the news in answer to a Tynwald question yesterday.

Kirstie and Clive Hesketh gave their reaction to the news their son Findley may have access to the life-changing medication:

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